The Turner Syndrome Society of the United States (TSSUS) is a national non-profit 501 (c) (3) EIN# 41-1596910 organization that provides health-related resources to patients, families and physicians for the diagnosis and treatment of Turner syndrome. There are chapters and support groups located throughout the country. TSSUS holds an annual conference with speakers from a variety of professions including medical experts, social workers, educators and psychologists. These meetings provide an opportunity to exchange information on many topics of interest to TS patients of all ages.
The Turner Syndrome Society was created in 1987 by a group of women in Chicago for the purpose of networking and support. Today we have over 600 members and over 100 volunteers to support and maintain our valuable programs. The TSSUS is operated by 2 staff members in Houston, 4 consultants and overseen by 11 nationwide board members.
The members of our society have offered a wealth of support and we understand that every person’s needs are unique and that Turner syndrome affects each girl and woman in a different way. Education is our foremost goal whether you are a member of our society or a guest, you can access the latest Turner Syndrome Clinical Guidelines, attend our National Conference, get support from parents and adult women that “have been where you are,” attend local chapter and support group events, plus access our many other resources.
Membership to our society allows us to continue to offer valuable services to all those touched by TS and also gives individuals, families and professionals the opportunity to access more resources.