Executive Director's Letter
Dear Friends of the Turner Syndrome Society of the US,
I’m so proud to serve the members of the TSSUS as well the TS community in general. My daughter, Brooke, was born in 1997 with Turner syndrome. I remember how scared I was at first- would she live? The frustration of finding information about TS that agreed with other information available, the doctors with terrible bedside manners, the tears of joy and the tears of worry along the way. I also remember that I said to myself, “I don’t want anyone else to have to search for the same things and feel like they are the first to hear of Turner syndrome, there has got to be a better way.” I stumbled upon the TSSUS and discovered the most down to earth people. With sweaty palms and a heavy heart, I called a volunteer that had TS herself and we just talked. I don’t remember what questions I asked, but they weren’t medically related, as I hung up the phone I was so relieved to know that my daughter was going to be just fine.
Our site is about the big picture of TS, the smiles, the hobbies, the challenges and the triumphs. Our Society is about the support of anyone touched by TS. We are one of 20 other TS Societies world-wide and there is power in numbers.
Our Society will celebrate our 25th anniversary in 2012 and I thank all those that have contributed to the mission of “Creating awareness, promoting research and providing support for all persons touched by Turner syndrome.”
Cindy Scurlock, MA
Executive Director of TSSUS
The photo is of me and my 1/2500 Brooke (she's 14)