TSSUS Programs
Awareness and Education
Awareness Campaign
o Pediatricians
o Geneticists
o Nurses (School and general)
Educational Publications - no charge if needed
o TS: A Guide for Families (English and Spanish)
o Clinical Care Guidelines
o TS General Brochure
o Prenatal Brochure
o Coley’s Story (for children)
o Teen Guide Booklet (11-15 year olds)
o Adult Healthcare Checklist
o TS Growth Chart
Website (recognized as the host for International TSS organizations)
o Official International TS Group Website
o Resources for various advocacy issues
Chapters/ Support Groups and Local Events
- Administrative Support and Guidance for approved events
- Announcement of local events on website and national emails
- Funding of local events
- Leader Packages (business cards, brochures, new materials)
- Leadership Workshop at conference or DVD
Conferences (Annual and Regional)
- Educational Sessions
- Social Events
Continuing Medical Credits (CME) for Physicians
- Through KUMC CME program sponsored by TSSUS, Genentech and Novo Nordisk
Communications
- Free educational materials mailed to anyone upon request (within the US)
- Newsletter (TSS Connect)
- New member packets (resources)
- Email updates 2 times a month
- Interest groups and topic call opportunities
- Over 100 peer expert volunteers to support others
National Conference Exhibit Booths hosted by TSSUS