Research Opportunities

The following studies have been approved by the TSSUS Medical Advisory Board for posting. The studies are required to have obtained their institutional IRB approvals prior to being approved. We are aware that other research studies are available and we receive requests to distribute surveys and "informal" research, but we limit the studies based on the strict TSSUS criteria set forth by the Medical Advisory Board therefore cannot post studies that do not have IRB approval. Consumer generated questions are important and may eventually inspire larger research studies. For that reason, if you have specific suggestions or ideas related to research, please contact us to discuss.

 

  • Long-term Growth and Skeletal Effects of Early Growth Hormone Treatment in Turner Syndrome

    This is an extension study that will gather long-term data on the effect of early growth hormone (GH) treatment... Read More

  • National Institutes of Health (NIH) Turner Syndrome Study

    You are invited to take part in this study if you are at least 10 years old and have a karyotype showing 70% or more abnormal cells.

    ... Read More
  • Learning and Behavior Study at UC-Davis

    Thomas Jefferson University is the site for a study of learning and behavior in girls and women with Turner Syndrome. In addition, we are performing brain imaging studies in... Read More
  • Invitation to 16 to 24 year olds with Turner Syndrome

    The purpose of this study is to describe the experiences of 16 to 24 year olds with Turner syndrome. This study will provide information on what these young women experience as... Read More
  • GenTac: National Registry of Genetically Triggered Thoracic Aortic Aneurysms and Cardiovascular Conditions

    Scientists are learning more every day about how genes play a role in our health. Our genetic make-up, or DNA, can influence whether we have a higher or lower risk of certain... Read More
  • Estrogen Dosing in Turner Syndrome

    Estrogen is necessary for feminization during puberty and to decrease bone resorption, the latter critical for... Read More

  • Linking physical, personality and social traits

    TSSUS member Kristin Schramer is working on... Read More
  • Comprehensive Turner Syndrome Research Study at Stanford University

    Girls (ages 3-12) with Turner Syndrome are... Read More
  • FOR INFANTS (or those soon-to-be born) AND CHILDREN with Turner Syndrome