The following studies have been approved by the TSSUS Medical Advisory Board for posting. The studies are required to have obtained their institutional IRB approvals prior to being approved. We are aware that other research studies are available and we receive requests to distribute surveys and "informal" research, but we limit the studies based on the strict TSSUS criteria set forth by the Medical Advisory Board therefore cannot post studies that do not have IRB approval. Consumer generated questions are important and may eventually inspire larger research studies. For that reason, if you have specific suggestions or ideas related to research, please contact us to discuss.
Long-term Growth and Skeletal Effects of Early Growth Hormone Treatment in Turner Syndrome
This is an extension study that will gather long-term data on the effect of early growth hormone (GH) treatment... Read MoreGenTac: National Registry of Genetically Triggered Thoracic Aortic Aneurysms and Cardiovascular Conditions
Scientists are learning more every day about how genes play a role in our health. Our genetic make-up, or DNA, can influence whether we have a higher or lower risk of certain... Read MoreEstrogen Dosing in Turner Syndrome
Estrogen is necessary for feminization during puberty and to decrease bone resorption, the latter critical for... Read MoreEvaluating the Effect of X/Y Chromosome on Immune System Health
This study will evaluate the effects of X and/or Y chromosome variations on the health of your immune system. Immune system defends us against all kinds of pathogens including... Read MoreComprehensive Turner Syndrome Research Study at Stanford University
NEW RESEARCH PROJECTS AT STANFORD NEED YOUR HELP!
To the TSSUS community– we are truly excited to announce... Read More