Comprehensive Turner Syndrome Research Study at Stanford University

Girls (ages 3-12) with Turner Syndrome are invited to participate in a NIH-funded research study designed to increase our understanding of learning, behavior, genetics and brain development.

Participation involves a 3-4 day evaluation including one or more of the following:

Comprehensive neuropsychological evaluation

Blood or saliva test (for genetic analysis)

Structural and functional MRI scan (to examine brain development and function)

Potential benefits of participating:

Written report providing results of neuropsychological evaluation

Opportunity to participate in one year follow-up to track developmental progression

Opportunity to participate in new treatment research studies designed to improve cognition and learning in girls with Turner syndrome (see below)

Access to ongoing updates about the outcomes of the study

$150 honorarium for participation

Local and long-distance travel arrangements will be made by Stanford research staff

so there will be no travel or lodging costs to families for participation.