July - 2018

Don't Be Discouraged; Live Your Spectacular Life!

I was diagnosed back in 1997 when not much was known about Turner syndrome. I did receive a prenatal diagnosis while doctors were looking...

Cream of the Crop

We're the Cream of the Crop, One out of every 2,000 are we (at least that’s the number given to me). Each unique in her own way with her...

There Were Tears, Mostly of Joy

We all live life with mysterious circumstances... why am I this or that... The chief mystery in my daughter's life has found a name -...

I Enjoy the Bond We "Butterfly Sisters" Share

I am one in 2,000. I am one of the 2 percent of babies with Turner syndrome who are born alive. My TS story actually starts before I was...

Welcome to Our Personal Stories About Life with TS.

If you want to know what life is really like for someone with TS just scroll through our TS Stories or search a specific topic. Once you read one, you won’t want to stop getting information, insight and inspiration from the true-life experiences of those touched by Turner Syndrome. We encourage you to get to know the authors of the stories as well as others by joining the TSSUS private FB group here, or attending one of our events.