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Our Own Mystery Diagnosis
My daughter, Audrey came into the world in September 2006. My pregnancy with her was extremely easy with no complications. Even the...
Today Would Have Been Her 31st Birthday
Collecting and editing these “My TS Stories” during Awareness Month and throughout the year for other Turner Syndrome Society...
Mastering Life My Way
I wanted to introduce myself and thank you for welcoming me into the Turner syndrome community of strong, empowered, and overcoming...
A Father's Inspiration
Several years ago, our daughter Berlyn, was diagnosed with TS. This of course was a great shock to us at first and created a tremendous...
A Heartfelt Plea from the TSSUS President
A few days ago, we received a call from a woman who was grieving the loss of her son’s new wife – her young daughter-in-law who suddenly...
When a Mother Knows
The other day I mentioned that Ella had Turner Syndrome in an Instagram post. I received so much positive feedback and questions that I...
Life isn't Always Easy, But it's Always Worth It!
Growing up, I always knew there was something different about me. I had a major surgery when I was five years old to correct a kidney...
On Angel Wings, She Flies
This is the hardest thing that we will ever share, but we share our story for two reasons: The most important is to honor the love and...
An Emotional Diagnosis
When I was 16 weeks pregnant, a blood test revealed elevated protein levels. Initially, doctors suggested this might be an indication of...
We Might have Bumps Along the Way, but We don't have to be Alone
I sat at our light-brown, circle, kitchen table. My family was smiling and looking at me reassuringly. It was nighttime and the kitchen...
