February - 2024

And though She is but Little, She is Fierce - by Adriana Garcia

My journey began when I was 12 and my twin sister and I had a doctor's appointment with our pediatrician to get our 12-year-old shots to...

Turner Syndrome will Challenge You by Rebecca Niemy

I should consider myself lucky, and I am. I’m incredibly lucky. I made it to the other side, which is a miracle to begin with. So yes,...

This is an Amazing Community! by Aleah Heffron

Hi, my name is Aleah. I’m a 19-year-old woman with Turner syndrome (TS). I was born in a small town in Michigan called Battle Creek. I...

Find Those Who Love You for Who You Are by Tracey Costes

My TS story will always be linked to a birthday. Have you ever had a birthday where, due to things out of your control, it doesn’t go as...

I'm Living Proof that We can Live Full and Vibrant Lives - by Madison Falvo

My name is Madison Falvo, and I am 20 years old. I was diagnosed with Turner syndrome (TS) at birth when my doctor noticed my size and my...

Butterflies are Warriors! by Tatiana Barrera

Hi! My name is Tatiana, and I am a TS butterfly! I was diagnosed at birth. My pediatrician noticed my hands and feet were swollen and...

Asking for Help is Self-Awareness Skill - by Chandler Isom

Hello! My name is Chandler Isom. I am 24 years old, and I have mosaic Turner syndrome (TS). I was diagnosed at 18 months old. I am a...

There Is So Much More Under the Scary - by Ellie Geppert

Hi! I’m Ellie. I’m 16, a sophomore in high school, and was diagnosed with classic Turner syndrome (TS) at birth. If you’re someone who’s...

TSSUS Board Member Spotlight, Introducing Jeanna Lee – TSSUS Board Chair

I am a native Floridian who was diagnosed with mosaic Turner syndrome (TS) at age 13. When I was diagnosed, due to cultural expectations,...

Our Community Understands and Will Fill You with More Hope Than Fear - by Molly Cardosi

“She has Turner syndrome - What is That?” Technically, it is a condition that results when one of the X chromosomes is missing or...

Welcome to Our Personal Stories About Life with TS.

If you want to know what life is really like for someone with TS just scroll through our TS Stories or search a specific topic. Once you read one, you won’t want to stop getting information, insight and inspiration from the true-life experiences of those touched by Turner Syndrome. We encourage you to get to know the authors of the stories as well as others by joining the TSSUS private FB group here, or attending one of our events.

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