February - 2025

My Turner Syndrome Diagnosis at 29 During Pregnancy - by Holly Hambright

I’m sharing my story to give hope to those trying to expand their families or who are pregnant and need reassurance. My name is Holly and...

The Most Important Thing for Me is Having Friends with Turner Syndrome - by June Amodeo

My Turner syndrome (TS) story started when I was diagnosed at birth, and a lot of my youth was spent at the Children's Hospital in...

TSSUS Has Something for Everyone - by Kristen McKenney, TSSUS Board Member

Hello TSSUS community! My name is Kristen McKenney and I have the privilege of serving on the board for the Turner Syndrome Society of...

I Choose to Always Stay in Gratitude - by Debra McMichael

Hi, my name is Debra and I just recently turned 45 years old. I live in Wisconsin. I was born here but have done my fair share of...

I Found an Outlet in Theater and Choir - by Emily Rose

Hi my Name is Emily Rose and I'm 19 years old. I was diagnosed with mosaic Turner syndrome (TS) at six weeks old. Growing up, this caused...

Teaching Special Education is the Path for Me - by Emily Jackson

Like so many, I was diagnosed with Turner syndrome (TS) before I was born. At the time, my parents were given what felt like horror...

The Challenges of Learning to Drive with Turner Syndrome and Nonverbal Learning Disability - by Becky Brown

Learning to drive is a significant milestone in life, offering independence and opportunities. However, for individuals with Turner...

Anything is Possible! by Lillian Moffett

My name is Lillian, I’m 24 years old and I have Turner syndrome (TS). My journey began when I was 8 years old. After lots of testing and...

If You Have IEP Questions, I'm Your Gal! - by Sarah Schneiderwent

My Turner syndrome (TS) journey started at birth. I was diagnosed right away. I had aortic stenosis and my first heart surgery at six...

Go For It, No Matter What - by Rayana Wilder

At around 12 years old, I was diagnosed with scoliosis and it was severe enough that it had to be surgically corrected. In the process of...

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Welcome to Our Personal Stories About Life with TS.

If you want to know what life is really like for someone with TS just scroll through our TS Stories or search a specific topic. Once you read one, you won’t want to stop getting information, insight and inspiration from the true-life experiences of those touched by Turner Syndrome. We encourage you to get to know the authors of the stories as well as others by joining the TSSUS private FB group here, or attending one of our events.

My Turner Syndrome Diagnosis at 29 During Pregnancy - by Holly Hambright

The Most Important Thing for Me is Having Friends with Turner Syndrome - by June Amodeo

TSSUS Has Something for Everyone - by Kristen McKenney, TSSUS Board Member

I Choose to Always Stay in Gratitude - by Debra McMichael

I Found an Outlet in Theater and Choir - by Emily Rose

Teaching Special Education is the Path for Me - by Emily Jackson

The Challenges of Learning to Drive with Turner Syndrome and Nonverbal Learning Disability - by Becky Brown

Anything is Possible! by Lillian Moffett

If You Have IEP Questions, I'm Your Gal! - by Sarah Schneiderwent

Go For It, No Matter What - by Rayana Wilder

Recent Posts

My Turner Syndrome Diagnosis at 29 During Pregnancy - by Holly Hambright

The Most Important Thing for Me is Having Friends with Turner Syndrome - by June Amodeo

TSSUS Has Something for Everyone - by Kristen McKenney, TSSUS Board Member

I Choose to Always Stay in Gratitude - by Debra McMichael

I Found an Outlet in Theater and Choir - by Emily Rose

Teaching Special Education is the Path for Me - by Emily Jackson

The Challenges of Learning to Drive with Turner Syndrome and Nonverbal Learning Disability - by Becky Brown

Anything is Possible! by Lillian Moffett

If You Have IEP Questions, I'm Your Gal! - by Sarah Schneiderwent

Go For It, No Matter What - by Rayana Wilder

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