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The Turner Syndrome Society of the United States: Advancing knowledge, facilitating research, and supporting all those touched by Turner syndrome.

TSSUS is the largest organization – worldwide – supporting the Turner syndrome community.

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My Deepest Hope is that We Will Be Reunited - by Pat Crowe (Kim's mom)

My Deepest Hope is that We Will Be Reunited - by Pat Crowe (Kim's mom)

When Kim was born in 1964, we were told she wouldn't live beyond her first year. At that time the medical field knew practically nothing...

The Challenges of Learning to Drive with Turner Syndrome and Nonverbal Learning Disability - by Becky Brown

The Challenges of Learning to Drive with Turner Syndrome and Nonverbal Learning Disability - by Becky Brown

Learning to drive is a significant milestone in life, offering independence and opportunities. However, for individuals with Turner...

Welcome to Our Personal Stories About Life with TS.

If you want to know what life is really like for someone with TS just scroll through our TS Stories or search a specific topic. Once you read one, you won’t want to stop getting information, insight and inspiration from the true-life experiences of those touched by Turner Syndrome. We encourage you to get to know the authors of the stories as well as others by joining the TSSUS private FB group here, or attending one of our events.

Recent Posts

My Deepest Hope is that We Will Be Reunited - by Pat Crowe (Kim's mom)

The Challenges of Learning to Drive with Turner Syndrome and Nonverbal Learning Disability - by Becky Brown

My Turner Syndrome Diagnosis at 29 During Pregnancy - by Holly Hambright

The Most Important Thing for Me is Having Friends with Turner Syndrome - by June Amodeo

TSSUS Has Something for Everyone - by Kristen McKenney, TSSUS Board Member

I Choose to Always Stay in Gratitude - by Debra McMichael

I Found an Outlet in Theater and Choir - by Emily Rose

Teaching Special Education is the Path for Me - by Emily Jackson

The Challenges of Learning to Drive with Turner Syndrome and Nonverbal Learning Disability - by Becky Brown

Anything is Possible! by Lillian Moffett

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