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When a Mother Knows
The other day I mentioned that Ella had Turner Syndrome in an Instagram post. I received so much positive feedback and questions that I...
Life isn't Always Easy, But it's Always Worth It!
Growing up, I always knew there was something different about me. I had a major surgery when I was five years old to correct a kidney...
On Angel Wings, She Flies
This is the hardest thing that we will ever share, but we share our story for two reasons: The most important is to honor the love and...
An Emotional Diagnosis
When I was 16 weeks pregnant, a blood test revealed elevated protein levels. Initially, doctors suggested this might be an indication of...
We Might have Bumps Along the Way, but We don't have to be Alone
I sat at our light-brown, circle, kitchen table. My family was smiling and looking at me reassuringly. It was nighttime and the kitchen...
A Single Dad Counts His Blessings
Here is my story. I live in Houston, Texas, and I’m single father raising my daughter, Taylor Rae, who is 3 years old. Taylor has classic...
When Open Heart Surgery Opens Your Heart
My whole life I knew I was different; from the moment I was born to the day I was diagnosed with Turner syndrome. A disorder only found...
One Tiny Heartbeat at a Time
My Turner syndrome story began in 1995. When I was 26 weeks pregnant, I went in for an AFP Plus / Triple Screen Test. My test results...
Foster to Adopt - One Butterfly's Path to Motherhood
Ever since I was a little girl, I dreamed about being a mother. My mother often tells a story about when I was growing up. I would gather...
Don't Be Discouraged; Live Your Spectacular Life!
I was diagnosed back in 1997 when not much was known about Turner syndrome. I did receive a prenatal diagnosis while doctors were looking...
