Search


I Enjoy the Bond We "Butterfly Sisters" Share
I am one in 2,000. I am one of the 2 percent of babies with Turner syndrome who are born alive. My TS story actually starts before I was...


Is Social Anxiety Holding You Back?
Many people feel socially awkward on occasion when faced with certain situations or people; it’s natural. For those who truly struggle...


It's Okay to Be Unique and to Love Who You Are
I was diagnosed with Turner syndrome when I was born. In my life, I have had to deal with so much. In middle school and high school, it...


My Parents Did as They Were Told - They Took Me Home And Loved Me
I was born outside of Philadelphia in 1965 - in a time before amniocentesis, ultrasounds, and genetic testing. My parents were of normal...


Adoption Means We Get to Give Someone a Second Chance at Life
The three most important dates in my life are April 26, 2009, January 9, 2010 and March 17, 2017. April 26th was the day my husband...


Who Owns the Story?
“My endocrinologist says I have a 4 percent risk of fracture on the hips and a 2 percent risk of fracture in the spine. S/he was only...


I Focus on What I Have, Not What I Don't Have Because of Turner Syndrome
I was born in Ohio in 1962. I had some feeding problems as a baby, frequent ear infections, and I was small for my age. I was a normal...


Sometimes It Feels Like There Is No Light At The End Of The Tunnel
See this picture of me and my amazing beautiful butterfly Gracie, who is 10 years old? As the old saying goes “A pictures says a...


Now I Just Think of Myself as a Mermaid
Hello Everyone. My Name is Rebecca, but I prefer Becky. I guess my story starts when I was 12. I was going to the doctor for a routine...


Your Daughter is Perfectly Created
My name is Stephanie Weaver. My daughter, Alyssa Cadence, was diagnosed with Turner syndrome at birth. The day of her birth was...