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Carly Joy Goes to the Capital
Today’s blog post is a little different – it’s actually two posts in one, both about a pretty amazing young girl named Carly Joy Bozym,...


Working in the Theater, On the Way to Independence
My name is Emily Limbach and I have Turner syndrome. I was diagnosed before birth when my birth mother had an amniocentesis after the...


We Helped Her Understand She Was Not Alone
My name is Jacquelyn. I am 35 years old and work as an administrative assistant. This is my story. I have known that I have Turner...


It All Seems Worthwhile
A long time ago (April 10, 1955) in a land far, far away (Miami Beach, Florida) I was born. I had swollen hands and feet and this weird...


I Wouldn't Change Things if I Could
My name is Holly, and I’m a 22 year old college student. I was diagnosed with Turner syndrome at 18 months old. The first time I met...


Your Life is So Valuable
My name is Brooke Staton. I'm currently a freshman in college. I'm majoring in diagnostic cardiac sonography. I'm so excited to see what...


Avery is a Fighter; She's Our Hero!
After beating the odds with a large, septated, cystic hygroma, Avery Elizabeth was born in June of 2009. In the womb, Avery had many...


Do Not Label Me
I was 36, and thought my child bearing days were over. I had endometriosis and had not had the easiest pregnancies or births previously...


We All Have Our Own Stories to Tell; This Is Mine
Greetings my sisters. I know we all have our own stories to tell... this is mine. Like all of you, we have our ups and downs. I truly...


A Light to Everyone She Meets
Kiersen was born in 2006 in distress. After an emergency c-section, she was taken to the NICU where it was determined she had an...