Blog | Houston | Turner Syndrome Society of the United States

I Entered the World Happy and Healthy by Kenzie Boldt

Hello! My name is Kenzie. I’m 13 years old, and I was diagnosed with Turner syndrome (TS) when I was 3 days old. I love singing, reading,...

I Felt a Sense of Community - by Jeanna Lee, TSSUS Board Chair

I am a native Floridian who was diagnosed with mosaic Turner syndrome (TS) at age 13. When I was diagnosed, due to cultural expectations,...

My Story is a Happy One - by Brittany Byers

Hi, my name is Brittany Byers. I was diagnosed with Turners syndrome (TS) at age 10. It was sort of random. I was suddenly taking growth...

I Felt Isolated Until My First TSSUS Conference - by Bria Kelly, TSSUS Board Member

Hello! My name is Bria Kelly, and I’m a 26 year old woman who was diagnosed with Turner syndrome at birth. I currently reside in Erie,...

Every Butterfly Deserves to Soar! by Jean-Marie Andrews

This is Ezelle’s story: It was a beautiful journey of strength and creativity when my daughter, Ezelle, was diagnosed with Turner...

I am Living Proof! by Madison Falvo

My name is Madison Falvo, and I am 21 years old. I was diagnosed with Turner syndrome (TS) at birth when my doctor noticed my size and my...

I May Be Small, But I Have Loud Roar! by Rylynn Wasson

My name is Rylynn (pronounced Rye-Lynn) Wasson. I am almost 14 and only found out last summer that I have Turner syndrome (TS). I am in...

Keep Flying, Regardless! by Jasmine Mathis

"She hasn't grown a centimeter in a year. She is also not showing signs of puberty or development. I am going to refer her to an...

I'm Thankful for Early Intervention by Audrey Lorigan

Shortly after I was born, I was diagnosed with Turner syndrome (TS). The doctors knew something wasn't completely normal as I had swollen...

My Pregnancy TS Roller Coaster by Alyssa Kozura

Hi everyone! I’m a proud mama of an (almost) 1 year old beautiful Ring X TS butterfly! My main point in sharing our story is to help...

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Welcome to Our Personal Stories About Life with TS.

If you want to know what life is really like for someone with TS just scroll through our TS Stories or search a specific topic. Once you read one, you won’t want to stop getting information, insight and inspiration from the true-life experiences of those touched by Turner Syndrome. We encourage you to get to know the authors of the stories as well as others by joining the TSSUS private FB group here, or attending one of our events.

I Entered the World Happy and Healthy by Kenzie Boldt

I Felt a Sense of Community - by Jeanna Lee, TSSUS Board Chair

My Story is a Happy One - by Brittany Byers

I Felt Isolated Until My First TSSUS Conference - by Bria Kelly, TSSUS Board Member

Every Butterfly Deserves to Soar! by Jean-Marie Andrews

I am Living Proof! by Madison Falvo

I May Be Small, But I Have Loud Roar! by Rylynn Wasson

Keep Flying, Regardless! by Jasmine Mathis

I'm Thankful for Early Intervention by Audrey Lorigan

My Pregnancy TS Roller Coaster by Alyssa Kozura

Recent Posts

My Deepest Hope is that We Will Be Reunited - by Pat Crowe (Kim's mom)

The Challenges of Learning to Drive with Turner Syndrome and Nonverbal Learning Disability - by Becky Brown

My Turner Syndrome Diagnosis at 29 During Pregnancy - by Holly Hambright

The Most Important Thing for Me is Having Friends with Turner Syndrome - by June Amodeo

TSSUS Has Something for Everyone - by Kristen McKenney, TSSUS Board Member

I Choose to Always Stay in Gratitude - by Debra McMichael

I Found an Outlet in Theater and Choir - by Emily Rose

Teaching Special Education is the Path for Me - by Emily Jackson

The Challenges of Learning to Drive with Turner Syndrome and Nonverbal Learning Disability - by Becky Brown

Anything is Possible! by Lillian Moffett

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