Blog | Houston | Turner Syndrome Society of the United States

Asking for Help is Self-Awareness Skill - by Chandler Isom

Hello! My name is Chandler Isom. I am 24 years old, and I have mosaic Turner syndrome (TS). I was diagnosed at 18 months old. I am a...

There Is So Much More Under the Scary - by Ellie Geppert

Hi! I’m Ellie. I’m 16, a sophomore in high school, and was diagnosed with classic Turner syndrome (TS) at birth. If you’re someone who’s...

TSSUS Board Member Spotlight, Introducing Jeanna Lee – TSSUS Board Chair

I am a native Floridian who was diagnosed with mosaic Turner syndrome (TS) at age 13. When I was diagnosed, due to cultural expectations,...

Our Community Understands and Will Fill You with More Hope Than Fear - by Molly Cardosi

“She has Turner syndrome - What is That?” Technically, it is a condition that results when one of the X chromosomes is missing or...

God Has a Plan for You - by Chrissi Baldridge

God has a plan. We were never promised this life would be easy and man if it does not seem if some of us get the extra helping of...

Learning to Love Myself - by Ontrinette Franklin

Hi everyone, my name is Ontrinette Franklin and I'm from Georgia. I entered foster care when I was around 3 years old. I've been in four...

Persistence and Self-Advocacy Allows Me to Serve in the Peace Corps in Africa - by Michaela Wolfinger

I’m currently serving in the Peace Corps with Turner syndrome (TS). There are many reasons why I decided to serve, including the...

She Battled with Faith, Fire, and Grace - Cassandra Mae "Cassie" Garrett, by her sister, Jennifer Jones

Cassandra Mae "Cassie Garrett, February 2, 1986 - December 20, 2020 Cassandra “Cassie” Mae Garrett was born February 2, 1986. She grew up...

I Grew Up Always Knowing . . . by Samantha Mosher

I was diagnosed with Turner syndrome (TS) at two weeks old. The doctor noticed my hands and feet were puffy from edema and ordered a...

I Think of Myself as Lucky by Emilija Sipaviciute

Ok, get ready because I’m basically going to share my entire life story. There’s so much I want to say, I don’t even know where to begin!...

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Welcome to Our Personal Stories About Life with TS.

If you want to know what life is really like for someone with TS just scroll through our TS Stories or search a specific topic. Once you read one, you won’t want to stop getting information, insight and inspiration from the true-life experiences of those touched by Turner Syndrome. We encourage you to get to know the authors of the stories as well as others by joining the TSSUS private FB group here, or attending one of our events.

Asking for Help is Self-Awareness Skill - by Chandler Isom

There Is So Much More Under the Scary - by Ellie Geppert

TSSUS Board Member Spotlight, Introducing Jeanna Lee – TSSUS Board Chair

Our Community Understands and Will Fill You with More Hope Than Fear - by Molly Cardosi

God Has a Plan for You - by Chrissi Baldridge

Learning to Love Myself - by Ontrinette Franklin

Persistence and Self-Advocacy Allows Me to Serve in the Peace Corps in Africa - by Michaela Wolfinger

She Battled with Faith, Fire, and Grace - Cassandra Mae "Cassie" Garrett, by her sister, Jennifer Jones

I Grew Up Always Knowing . . . by Samantha Mosher

I Think of Myself as Lucky by Emilija Sipaviciute

Recent Posts

My Deepest Hope is that We Will Be Reunited - by Pat Crowe (Kim's mom)

The Challenges of Learning to Drive with Turner Syndrome and Nonverbal Learning Disability - by Becky Brown

My Turner Syndrome Diagnosis at 29 During Pregnancy - by Holly Hambright

The Most Important Thing for Me is Having Friends with Turner Syndrome - by June Amodeo

TSSUS Has Something for Everyone - by Kristen McKenney, TSSUS Board Member

I Choose to Always Stay in Gratitude - by Debra McMichael

I Found an Outlet in Theater and Choir - by Emily Rose

Teaching Special Education is the Path for Me - by Emily Jackson

The Challenges of Learning to Drive with Turner Syndrome and Nonverbal Learning Disability - by Becky Brown

Anything is Possible! by Lillian Moffett

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