coarction of the aorta | Turner Syndrome

When Open Heart Surgery Opens Your Heart

My whole life I knew I was different; from the moment I was born to the day I was diagnosed with Turner syndrome. A disorder only found...

Your Daughter is Perfectly Created

My name is Stephanie Weaver. My daughter, Alyssa Cadence, was diagnosed with Turner syndrome at birth. The day of her birth was...

Sometimes, You've Got to Prove Them Wrong!

I was born February 20, 1984, and was diagnosed with Turner syndrome (TS) when I was six months old. The pediatrician, who turned out to...

Avery is a Fighter; She's Our Hero!

After beating the odds with a large, septated, cystic hygroma, Avery Elizabeth was born in June of 2009. In the womb, Avery had many...

We All Have Our Own Stories to Tell; This Is Mine

Greetings my sisters. I know we all have our own stories to tell... this is mine. Like all of you, we have our ups and downs. I truly...

A Light to Everyone She Meets

Kiersen was born in 2006 in distress. After an emergency c-section, she was taken to the NICU where it was determined she had an...

Welcome to Our Personal Stories About Life with TS.

If you want to know what life is really like for someone with TS just scroll through our TS Stories or search a specific topic. Once you read one, you won’t want to stop getting information, insight and inspiration from the true-life experiences of those touched by Turner Syndrome. We encourage you to get to know the authors of the stories as well as others by joining the TSSUS private FB group here, or attending one of our events.