cystic hygroma | Turner Syndrome

On Angel Wings, She Flies

This is the hardest thing that we will ever share, but we share our story for two reasons: The most important is to honor the love and...

Working in the Theater, On the Way to Independence

My name is Emily Limbach and I have Turner syndrome. I was diagnosed before birth when my birth mother had an amniocentesis after the...

Your Life is So Valuable

My name is Brooke Staton. I'm currently a freshman in college. I'm majoring in diagnostic cardiac sonography. I'm so excited to see what...

Avery is a Fighter; She's Our Hero!

After beating the odds with a large, septated, cystic hygroma, Avery Elizabeth was born in June of 2009. In the womb, Avery had many...

Welcome to Our Personal Stories About Life with TS.

If you want to know what life is really like for someone with TS just scroll through our TS Stories or search a specific topic. Once you read one, you won’t want to stop getting information, insight and inspiration from the true-life experiences of those touched by Turner Syndrome. We encourage you to get to know the authors of the stories as well as others by joining the TSSUS private FB group here, or attending one of our events.