heart surgery | Turner Syndrome

When Open Heart Surgery Opens Your Heart

My whole life I knew I was different; from the moment I was born to the day I was diagnosed with Turner syndrome. A disorder only found...

Your Daughter is Perfectly Created

My name is Stephanie Weaver. My daughter, Alyssa Cadence, was diagnosed with Turner syndrome at birth. The day of her birth was...

Your Life is So Valuable

My name is Brooke Staton. I'm currently a freshman in college. I'm majoring in diagnostic cardiac sonography. I'm so excited to see what...

Avery is a Fighter; She's Our Hero!

After beating the odds with a large, septated, cystic hygroma, Avery Elizabeth was born in June of 2009. In the womb, Avery had many...

A Light to Everyone She Meets

Kiersen was born in 2006 in distress. After an emergency c-section, she was taken to the NICU where it was determined she had an...

Every Sunrise Is More Beautiful Than Ever

February is Turner Syndrome Awareness Month. I would like to kick it off by sharing my story. It is personal, but I share it for...

Welcome to Our Personal Stories About Life with TS.

If you want to know what life is really like for someone with TS just scroll through our TS Stories or search a specific topic. Once you read one, you won’t want to stop getting information, insight and inspiration from the true-life experiences of those touched by Turner Syndrome. We encourage you to get to know the authors of the stories as well as others by joining the TSSUS private FB group here, or attending one of our events.