Lymphedema | Turner Syndrome

My Parents Did as They Were Told - They Took Me Home And Loved Me

I was born outside of Philadelphia in 1965 - in a time before amniocentesis, ultrasounds, and genetic testing. My parents were of normal...

Your Daughter is Perfectly Created

My name is Stephanie Weaver. My daughter, Alyssa Cadence, was diagnosed with Turner syndrome at birth. The day of her birth was...

Your Life is So Valuable

My name is Brooke Staton. I'm currently a freshman in college. I'm majoring in diagnostic cardiac sonography. I'm so excited to see what...

We All Have Our Own Stories to Tell; This Is Mine

Greetings my sisters. I know we all have our own stories to tell... this is mine. Like all of you, we have our ups and downs. I truly...

Welcome to Our Personal Stories About Life with TS.

If you want to know what life is really like for someone with TS just scroll through our TS Stories or search a specific topic. Once you read one, you won’t want to stop getting information, insight and inspiration from the true-life experiences of those touched by Turner Syndrome. We encourage you to get to know the authors of the stories as well as others by joining the TSSUS private FB group here, or attending one of our events.