TSSUS National Conference | Turner Syndrome

I Focus on What I Have, Not What I Don't Have Because of Turner Syndrome

I was born in Ohio in 1962. I had some feeding problems as a baby, frequent ear infections, and I was small for my age. I was a normal...

My Hardships and Blessings

Hi, my name is Carrie Odom. I was born and raised in Fort Walton Beach, Florida, and have one older sister. I was diagnosed with Turner...

I Am One Out of 2,000

I am one out of 2,000. Imagine having your first baby girl and some of the first words the doctor says are, "She probably has Turner...

Working in the Theater, On the Way to Independence

My name is Emily Limbach and I have Turner syndrome. I was diagnosed before birth when my birth mother had an amniocentesis after the...

It All Seems Worthwhile

A long time ago (April 10, 1955) in a land far, far away (Miami Beach, Florida) I was born. I had swollen hands and feet and this weird...

I Wouldn't Change Things if I Could

My name is Holly, and I’m a 22 year old college student. I was diagnosed with Turner syndrome at 18 months old. The first time I met...

Do Not Label Me

I was 36, and thought my child bearing days were over. I had endometriosis and had not had the easiest pregnancies or births previously...

Welcome to Our Personal Stories About Life with TS.

If you want to know what life is really like for someone with TS just scroll through our TS Stories or search a specific topic. Once you read one, you won’t want to stop getting information, insight and inspiration from the true-life experiences of those touched by Turner Syndrome. We encourage you to get to know the authors of the stories as well as others by joining the TSSUS private FB group here, or attending one of our events.