Turner Syndrome Awareness Month

We Might have Bumps Along the Way, but We don't have to be Alone

I sat at our light-brown, circle, kitchen table. My family was smiling and looking at me reassuringly. It was nighttime and the kitchen...

When Open Heart Surgery Opens Your Heart

My whole life I knew I was different; from the moment I was born to the day I was diagnosed with Turner syndrome. A disorder only found...

My Parents Did as They Were Told - They Took Me Home And Loved Me

I was born outside of Philadelphia in 1965 - in a time before amniocentesis, ultrasounds, and genetic testing. My parents were of normal...

I Focus on What I Have, Not What I Don't Have Because of Turner Syndrome

I was born in Ohio in 1962. I had some feeding problems as a baby, frequent ear infections, and I was small for my age. I was a normal...

Now I Just Think of Myself as a Mermaid

Hello Everyone. My Name is Rebecca, but I prefer Becky. I guess my story starts when I was 12. I was going to the doctor for a routine...

Your Daughter is Perfectly Created

My name is Stephanie Weaver. My daughter, Alyssa Cadence, was diagnosed with Turner syndrome at birth. The day of her birth was...

My Hardships and Blessings

Hi, my name is Carrie Odom. I was born and raised in Fort Walton Beach, Florida, and have one older sister. I was diagnosed with Turner...

I No Longer Want Turner Syndrome to Be Something I Hide

My name is Katie and I am a 22 year-old first year masters student in Special Education at Vanderbilt University in Nashville, though I...

I Am One Out of 2,000

I am one out of 2,000. Imagine having your first baby girl and some of the first words the doctor says are, "She probably has Turner...

A Mother's Fight for Her Daughter's Education

My daughter, Missy, is a sweet 11-year-old who loves to read and help animals. She wants to be a veterinarian when she grows up. Since...

Welcome to Our Personal Stories About Life with TS.

If you want to know what life is really like for someone with TS just scroll through our TS Stories or search a specific topic. Once you read one, you won’t want to stop getting information, insight and inspiration from the true-life experiences of those touched by Turner Syndrome. We encourage you to get to know the authors of the stories as well as others by joining the TSSUS private FB group here, or attending one of our events.