Webbed neck | Turner Syndrome

Now I Just Think of Myself as a Mermaid

Hello Everyone. My Name is Rebecca, but I prefer Becky. I guess my story starts when I was 12. I was going to the doctor for a routine...

I Am One Out of 2,000

I am one out of 2,000. Imagine having your first baby girl and some of the first words the doctor says are, "She probably has Turner...

We All Have Our Own Stories to Tell; This Is Mine

Greetings my sisters. I know we all have our own stories to tell... this is mine. Like all of you, we have our ups and downs. I truly...

Welcome to Our Personal Stories About Life with TS.

If you want to know what life is really like for someone with TS just scroll through our TS Stories or search a specific topic. Once you read one, you won’t want to stop getting information, insight and inspiration from the true-life experiences of those touched by Turner Syndrome. We encourage you to get to know the authors of the stories as well as others by joining the TSSUS private FB group here, or attending one of our events.

Now I Just Think of Myself as a Mermaid

I Am One Out of 2,000

We All Have Our Own Stories to Tell; This Is Mine

Recent Posts

Building Lasting Friendships: Social Skills for Individuals with Turner Syndrome and Nonverbal Learning Differences

Autonomy Allowed Me to Imagine a Successful and Happy Adulthood - by Claire Harper

I am Turner Strong! - by LaShelle Jennings

A New Diagnosis Can Be Isolating - by Elizabeth Dabrowski, MD, TSSUS Board Member

Understanding Social Challenges in Turner Syndrome: Navigating Friendships and Connection

Life is Better with Butterfly Friends! - by Stephanie Guy

Turner Syndrome is a Learning Curve - by Jessica Carlough

TSSUS is Like Family, and the Conference is Like Home - by Erica Melman

This Girl Amazes Me! by Olivia Brambila's Grandmother

Do The Best You Can With What You Have! by Ariel Moreno

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