TSSUS is the largest organization – worldwide – supporting the Turner syndrome community.
The Turner Syndrome Society of the United States: Advancing knowledge, facilitating research, and supporting all those touched by Turner syndrome.
The 2025 TSSUS National Turner Syndrome Conference
The 2025 TSSUS National Turner Syndrome Conference
The 2025 TSSUS National Turner Syndrome Conference
Overcoming Your Limits
Event dates: 7/18-7/19; Friday 7/18 - Saturday 7/19 (research day 7/17) • DoubleTree by Hilton Portland, Oregon
Registration opens in January 2025
DoubleTree by Hilton Hotel - Portland
Book Now:
Available Rooms - DoubleTree by Hilton Hotel Portland
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Click on the blue numbers to edit the default hotel dates to choose the dates you want.
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Include the names of guests staying in your room to receive additional keys during check-in.
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A $194 deposit/charge on your credit card is required when booking.
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If you need a refrigerator for medication in your guest room, let the hotel know by filling in the Special Request option at the bottom of the reservation page.
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Self-parking is $14.00 per vehicle for TSSUS guests, which is not reflected on the standard hotel website reservation page.
3 Main Conference Goals
To provide information for adults living with TS and family members of those with TS. Our medical presenters and panelists are TS experts in topics most important to the TS community. Presenters include time for questions and answers because they understand attendees may not have quality resources in their local areas. Many attendees have never attended a conference; therefore, we focus on providing basic information about health conditions and health management related to TS. We incorporate interactive sessions encouraging people to learn from one another and share different perspectives to address mental health topics.
To provide opportunities for adult attendees to build and expand their support systems. We encourage people to meet others through breakout group discussions and social activities.
To provide a safe environment for youth program attendees (under 19) to make friends, have fun, and learn age-appropriate basics about TS. Children with TS create life-long friendships in our youth program as they enjoy crafts, games, and interactive discussions. They are separated by age and their affiliation to TS and include children of all abilities, which limits opportunities for outings both in and outside the hotel. Please note that if a child requires more attention than we can offer, we encourage the parent to help out in the youth room or check them in/out as needed.
The Conference is available to EVERYONE! In 2023, half of the adult attendees had TS or were parents of those with TS. More than 300 people had never attended a TSSUS conference before. About 100 children attended the youth program (75 had TS and 25 did not {siblings and children of those with TS).
