TSSUS is the largest organization – worldwide – supporting the Turner syndrome community.
The Turner Syndrome Society of the United States: Advancing knowledge, facilitating research, and supporting all those touched by Turner syndrome.
Programs & Services
TSSUS Turner Syndrome
Programs
Chasing Butterflies Walks
Chasing Butterflies Walks (CBW) are national signature fundraising events for TSSUS, and they support our mission to advance knowledge, facilitate research, and provide support for everyone touched by Turner syndrome (TS).
TSSUS on Facebook
Facebook Private Groups
Need advice or encouragement or want to share good news with others that can relate? TSSUS Private FB groups are the answer.
Scholarships
We offer 4 types of Scholarships:
Membership, Life Enrichment, College, and Conference Registration.
Find out about who is eligible and details about what each scholarship covers.
Obituaries
Memorials
Butterfly Wings to Angel Wings. The world changes from year-to-year and our lives from day-to-day, but the love and memory of you shall never pass away.
TS
Conference
TSSUS Annual Educational TS Conference The National Turner Syndrome Conference offers patients and families a unique opportunity to connect with others in the TS community, attend educational sessions, join youth groups, get health screenings and much more.
Services
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Personal
Help
Personal Help: Discuss your needs with TSSUS staff. We are always happy to answer questions or listen to your concerns and encourage you. Please call 800-365-9944 or email us.
Peer-Led Support Groups
Online and in-person meetings that connect you with others so you may support one another. Some groups meet according to age and some by location, they all are informal and respectful. Find support groups in your area here (Support Groups), or here (Event Calendar).
Butterfly Connections
New to TS? Stumped on what to do? Interested in talking to someone that may know how you feel? Contact us and we will connect you with an expert peer volunteer.
Research
TSSUS advances research in areas the TS community identifies as important. We maintain a scientific advisory board, facilitate study recruitment, maintain a national registry of individual’s health and contact information, produce research articles and assists researchers with various needs. Please support TS research.